In the Sanctuary of Outcasts: A Memoirby Neil White
William Morrow, 304 pp, $25.99
On sale: June 2009
Located on a drowsy bend of the Mississippi River in southern Louisiana, Carville is home to the National Hansen's Disease Museum. It was named for political personality James Carville's grandfather and was home to the Federal Medical Center, a minimum security facility for non-violent federal prisoners and inmates with chronic health problems. Carville, more importantly, was also home to the nation's only leprosarium, which in it's latter days - to both White's astonishment and my own - served as housing for leprosy patients and Federal inmates in the same building as well as an order of nuns within the grounds.
In the Sanctuary of Outcasts is Neil White's memoir of the time he served as a inmate at the Federal Medical Center at Carville. Written as a series of chronological anecdotes,
Sanctuary takes us through the circumstances that led to White's conviction for bank fraud, his sudden introduction to leprosy and his life as an inmate at Carville.
For anyone who is astounded at the very idea of leprosy - or Hansen's disease, as it is now called -- being a malady of the modern era (current US Department of Health statistics estimate that there are 6,500 cases as of this writing), this book will give you some insight into a few patient's experiences as well as dispelling some common myths about the disease. One woman's story is especially touching. Ella Bounds was committed to Carville at the age of 12, delivered to the front gate by her father, never to see her family again. Ella, in her 80's at the time of White's incarceration, had spent the vast majority of her life in the institution.
In the Sanctuary of Outcasts is not a scholarly study of Hansen's disease in America, although it gives patients stricken with the disease a very human face. Moreso this is the story of one man's growth -- a sort of mid-life "coming of age" tale -- and a window into one mans very unique experience. By turns it is funny, intriquing, irreverent, shocking, and profoundly moving.
Sanctuary is highly readable and deeply satisfying.